So, I apologize in advance that this is going to be yet another post about gluten! And it's a long one. But, hey, it's my blog, and you can choose to not read it, so I guess I don't really need to apologize after all! I just need to get out into words all the things I'm thinking about, because somehow that helps me, personally, figure all my shiz out. For rizzle.
I'm not sure how long I've suspected that I have an issue with gluten. In 2005, right before a trip to Ghana, and especially right after I got back, I remember having awful stomach issues, but I chalked that up to my waxing and waning lactose intolerance that I've had since I was a kid. I think I started suspecting that gluten could be an issue after a few friends of mine were diagnosed with Celiac. These friends also happened to have Type 1 and that's when I found out that they pretty much go hand in hand. But, I'm stubborn, and sick of being "the sick one," and decided that gluten was not my problem, that indeed I did not have any more problems, and so I never tried to go gluten free to see how it made me feel.
But, my stomach/intestinal issues just kept getting worse. I was so opposed to the idea of gluten being the culprit, that I actually thought for awhile that I had
gastroparesis which is a particularly nasty complication that can result from having diabetes (one that the doctors don't tell you about, but which I think is infinitely more scary than having a limb amputated--but that's a whole different post). The symptoms of gastroparesis are very similar to those of gluten sensitivity. Only I think it's worse, because if you have gastroparesis symptoms, you pretty much can't reverse it and your screwed. But I never told anyone about that, because I was so scared that that might actually be what my problem was! Yikes spikes!
Things changed a little bit after a couple of things happened. First, I got a new endo, and she immediately wanted to know if I'd ever been tested for celiac or if I had stomach issues. I never had, and she tested me (blood test came back negative) but said I could try going gluten free and see if that helped. Second, I spent a week with my awesome cousin and aunt in Cincinnati while he received tests for a particularly nasty illness that he has. He has to go gluten free, too. His doctor in Cincinnati wanted to know if any members of his family had celiac disease, or if any of his family had Type 1 diabetes! My aunt told him that I had type 1 and his doctor was super surprised that I wasn't diagnosed with celiac disease and made it sound like because I've had type 1 that it was just inevitable. Any way, spending that week with my cousin & aunt was eye opening and made me see that going GF was hard, but not as bad as I thought it would be! And, finally, I started tallying up in my head just how many Type 1's I knew, and just how many of them have been diagnosed with celiac/gluten intolerance. It was statistically significant, let's just put it that way.
So, I started trying to go gluten free. Which was actually not that hard, I didn't really buy lots of specialty foods and just started cooking more and eating out less and eating less processed stuff. I've been trying to gluten free as much as I possibly can for about a month or two now, and I can't believe how much better I feel! All those intestinal symptoms I had before (especially feeling bloated, and feeling super full by the end of the day) have pretty much disappeared. The thing that I have noticed the most, is that I actually feel hunger pangs again. I knew I was hungry and needed to eat before, but I wasn't feeling hunger pangs. You know, the feeling you get when you've been working hard in the yard or something all day, and you come inside and are starving and ready to eat a big meal, and when you do you are so satisfied? Yeah, I wasn't feeling that before, I was just feeling bloated. And I'm totally feeling that again now.
Also, my blood sugars are SO much easier to control! Holy freaking blood sugar cow. One of the reasons I thought I had gastroparesis before was because I would often eat and then go immediately low, treat it, and then spike up super high afterward. This is a sign of gastroparesis, because your body doesn't digest stuff like it should, so your insulin starts working before you start digesting food. You go low, so you treat it, but really you still have all that food in your body, so you didn't really need to treat the low, you just needed to wait (hours!) for your body to digest it, so then you go high afterward. Now, I'm convinced that was happening because my body doesn't digest gluten very well. Since I've been eating gluten free, this hasn't happened to me. But, the other day, I chose to eat gluten. Like all day long. I ate crackers, I ate regular bread, and I ate normal brownies. And oh how I suffered! I was super bloated and uncomfortable by the evening (not to mention the lower intestinal issues the next day). And at night, I had dinner, took my insulin, went low, treated it, and went super high afterwards! Just like before. I haven't eaten gluten since then, and that feeling is gone, and I haven't had a weird low-high situation like that.
Anyway, so as much as I am annoyed that gluten is the culprit in all this stuff, I am equally as excited to know that I don't have gastroparesis (sheesh, that is like my greatest diabetes fear!--other than dying in child birth like Julia Roberts in Steel Magnolias), and equally as thrilled to be feeling better! And, because I like to cook/bake, I'm equally as excited to experiment with new and different foods. I'm a little apprehensive about trying to live the gluten free lifestyle and letting the world know that I'm living it. Right now, only my blog readers and good friends know that this is going on. I don't want to inconvenience people, I don't want people to see me as "that girl with all the problems," etc. But, I know that the people that really matter in my life don't care, and are just glad that I'm doing what I need to do to be healthy. Why is it anyway, that some medical issues people are super duper ready to get behind and support, and others people are skeptical about, or find it annoying or inconvenient? For example: I've been reading things about schools that have decided to go "peanut free" or "allergen free" because of all the kids that have food allergies, and how some parents are in a total outrage about it. Why are people so ready to get behind kids with cancer, but not ready to get behind kids that will get seriously sick (and possibly die?!) because of peanuts? Shouldn't we all just support each other in what we need to do to be healthy? Any way, that's probably another post too, but I was thinking about that, so I'm writing it down.
Ok, this is long, but the basic point of this whole post is this: Gluten and me don't get along. I'm avoiding it, I feel better and it has helped my diabetes! Bonus! And also, mean people are dumb.
:)